Our goal is to reach all risky gene carriers to ensure they have the opportunity to make informed health choices but we can't do that without help. Of course, adequate funding is essential but there are many other ways to help that extend past sponsorships and donations. If you have a service to donate or would like to volunteer please contact us.
If we don't do something, who will?
Risky Genes™ Awareness Program
Hereditary cancer is more dangerous than spontaneous cancer. Risky gene carriers experience far more cancer and at younger ages than those in the general population. There is a a greater chance of recurrence or a second primary site and hereditary cancer tends to be more aggressive. Male and female carriers can both carry risky genes and pass them to biological children at a rate of 50%.
Statistics vary, depending on the source, but more than 1 million Canadians are estimated to be risky gene carriers. However, research reports more than 80% of them remain unaware, so unable to make informed health decisions that could save their lives To make matters worse, some research reports subsequent generations are being diagnosed with hereditary cancer earlier than previous generations, by nearly a decade.
Despite this type of hereditary cancer being discovered in 1995, virtually no programs existed through the years to actively search out the only population in which cancer prevention is possible or to inform them of specialized cancer treatments. Nor, were there resources available to connect carriers to each other or encourage them to become involved in their own cause. Seeing there was no time to lose, some of our young carriers decided to make a difference and developed the RISKY GENES AWARENESS PROGRAM.
To this end, the risky genes website was created as a quick study with links to additional information, printed materials prepared, social media sites launched and, with the help of several media and production professionals willing to give of their time and resources, commercials produced for the purpose of online distribution and television. The following commercial represents the first we are aware of in the world focused on hereditary cancer. We were able to air it in parts of Western Canada over a period of two years with some of the funding available to date. It is available on Youtube for sharing with your contacts on social media - you could save a life!
Program aims are: