Families affected by risky genes experience far more cancer and at younger ages than those in the general population. Risky gene carriers have a greater chance of recurrence or a second primary cancer and their cancer tends to be more aggressive.  Male and female carriers pass their risky genes to their biological children at a rate of 50%.  Statistics vary, depending on the source, but based on conservative data primarily out of the larger cancer organizations and the medical community, more than 1 million Canadians are estimated to be risky gene carriers.  However, research reports more than 80%  of them remain unaware, so unable to make informed health decisions that could save their lives  There is also research that reports subsequent generations are being diagnosed with hereditary cancer earlier than previous generations, by nearly a decade

Despite this type of hereditary cancer being known for more than two decades, virtually no programs existed to actively search out prospective carriers.  Nor, were there resources available that could connect risky gene carriers with each other to encourage them to become involved directly in their own cause.  ​Seeing there was no time to lose, some of our young people decided to do something to make a difference and created the  RISKY GENES  AWARENESS PROGRAM.


The program aims are:

  1. to help find the many thousands of people who do not yet know they carry risky genes to provide them with the tools they need to save their lives,
  2. to provide a framework for existing risky gene carriers to become involved, and
  3. to garner public support for new and existing programs specifically targeted to hereditary cancer.

To this end, the risky genes website was created with the help of a corporate partner to appeal to other young risky genes carriers. Then, with the help of several media and production professionals willing to give of their time and resources, two commercials were produced for the purpose of online distribution and airing on network television, as funds became available. These commercials have been aired in select regions on several occasions and versions appropriate for social media sharing are available on Youtube for you to share with your contacts, links below.​  

Risky Genes™ Awareness Program

There are so many other ways to help.  If you would like to be involved in any of the following ways, please contact us.

■ funding
■ marketing & promotion
■ AV services
■ telling your story from a risky gene carrier’s perspective
■ telling your story from a family member’s perspective
■ telling your story from a medical professional’s perspective

If we don't do something, who will?