Privacy Policy

Our Commitment
The Hereditary Breast and Ovarian Cancer Society ("HBOC Society") understands the importance of personal privacy and values the privacy of our members. The HBOC Society acknowledges the sensitivity of personal information, particularly the sensitivity of personal health information. Therefore, we have adopted this privacy policy to reflect and shape the practices of our organization.

 The objective of this privacy policy is to adopt responsible information practices. This policy will be reviewed periodically in order to ensure its timeliness and relevance.

This Privacy Policy requires that the HBOC Society limit the use and disclosure of personal information. Personal medical information will not be used or disclosed without the express prior consent of the individual from whom the information was collected.

This Privacy Policy is modeled on the Canadian Standards Association's Model Code for the Protection of Personal Information: A National Standard of Canada, CAN/CSA-Q830-96. 

Summary of Principles

This Privacy Policy adopts the ten principles of the CSA Model Code, namely:

1. Accountability
An organization is responsible for personal information under its control and shall designate an individual or individuals who are accountable for the organization's compliance with the following principles.

2. Identifying Purposes
The purposes for which personal information is collected shall be identified by the organization at or before the time the information is collected.

3. Consent
The knowledge and consent of the individual are required for the collection, use, or disclosure of personal information, except where inappropriate.

4. Limiting Collection
The collection of personal information shall be limited to that which is necessary for the purposes identified by the organization. Information shall be collected by fair and lawful means.

5. Limiting Use, Disclosure, and Retention
Personal information shall not be used or disclosed for purposes other than those for which it was collected, except with the consent of the individual or as required by law. Personal information shall be retained only as long as necessary for the fulfilment of those purposes.

6. Accuracy
Personal information shall be as accurate, complete, and up-to-date as is necessary for the purposes for which it is to be used.

7. Safeguards
Personal information shall be protected by security safeguards appropriate to the sensitivity of the information.

8. Openness
An organization shall make readily available to individuals specific information about its policies and practices relating to the management of personal information.

9. Individual Access Upon Request
An individual shall be informed of the existence, use, and disclosure of his or her personal information and shall be given access to that information. An individual shall be able to challenge the accuracy and completeness of the information and have it amended as appropriate.

10. Challenging Compliance
An individual shall be able to address a challenge concerning compliance with the above principles to the designated individual or individuals accountable for the organization's compliance.

For more information on the HBOC Society Privacy Policy contact:
HBOC Society,  #114, 11728 Kingsway Avenue Edmonton, AB  T5G 0X5

For copies of the CSA Model Code for the Protection of Personal Information contact:
Canadian Standards Association, 178 Rexdale Blvd.  Etobicoke, Ontario  M9W 1R3

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