NOTE: Since its discovery in 1995, this type of hereditary cancer has changed from one type of cancer, caused by mutations in only one gene to several types of cancer, caused by mutations in any of many different genes. As a result, all labels used to describe this syndrome, such as ''breast cancer gene'', ''BRCA'', ''hereditary breast and ovarian cancer'' and ''HBOC'' tell only part of the story, leaving out well over half of those who are affected. To better serve our patient group, we are in the process of changing our name and updating all resources to reflect the fully inclusive and future forward RISKY GENES™ brand. We ask for your patience during this process.
join a committee
ATTEND an event
A great way to get connected is to give back through volunteering. There are so many ways to help and we can always use a helping hand! Another great way is to attend one of our events.
The road can be a long one for a risky gene carrier. If you are thinking about genetic testing, at the end of your prevention or cancer journey, or anywhere in between we can connect you with someone who has been there.
telephone, email, text and social
There is so much to know when one is a risky gene carrier and so many questions. We are happy to help in any way we are able including putting you in touch with other helpful resources.