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Learning one carries RISKYGENES can be an extremely traumatic experience. People living in affected families have often lost parents, siblings, children and/or other close relatives and live in constant fear of being next. It's hard to take the step to find out whether you carry RISKYGENES and it is even harder to make the difficult choices required to protect yourself in the case of a positive genetic test result.
We are here to help with up-to-date information, helpful resources and to provide supportive connections with others who have been there.
Have fun while meeting others like you
WHO IS AFFECTED?
We provide essential information and supportive connections to help you at any point in your journey
Hereditary breast and ovarian cancer (HBOC) syndrome is the presence of inherited gene mutations that cause the carrier to have a higher risk of breast and ovarian cancer than those in the general population, often considerably higher. People who carry these mutations may also have an increased risk of some other types of cancer, including but not limited to prostate cancer, pancreatic cancer and melanoma. This condition is often referred to as 'the breast cancer gene'', being ''high risk'' or by one of the genes that fall under HBOC syndrome such as ''BRCA'' but these terms don't tell the whole story. We prefer the more inclusive term, RISKYGENES
About 10% of all breast and prostate cancer and up to 25% of all ovarian cancer is known to be hereditary. This translates to at least1/2 million Canadians who have or will develop hereditary breast, ovarian or prostate cancer. Not all RISKY GENE carriers will develop cancer, and some will develop one of the other related types of cancer. Taking this into account, over 1 million Canadians are estimated to carry RISKY GENES.
Unfortunately, awareness remains so low that about 80% of all carriers are not yet aware, so can't make informed decisions that could save their lives.
WHAT IS HBOC SYNDROME?
Nothing can make your own journey seem less daunting than helping others in a similar situation. There are so many ways to help, ranging from simply leaving us your name as a supporter of the cause, to volunteering for events or joining a working committee. Or, you can save lives by getting involved in the RISKY GENES AWARENESS PROGRAM, launched by our young carriers..
If we don't support our own cause, who will?