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Learning one carries RISKYGENES can be an extremely traumatic experience. People living in affected families have often lost parents, siblings, children and/or other close relatives and live in constant fear of being next. It's hard to take the step to find out whether you carry RISKYGENES and it is even harder to make the difficult choices required to protect yourself in the case of a positive genetic test result.
We can help with up-to-date information, helpful resources and to provide supportive connections with others who have been where you are.
Have fun while meeting others like you
WHO IS AFFECTED?
We provide essential information and supportive connections to help you at any point in your journey
Hereditary breast and ovarian cancer (HBOC) syndrome is the presence of inherited gene mutations that cause the carrier to have a higher risk of breast and ovarian cancer than those in the general population, often much higher. People who carry these mutations may also have an increased risk of some other types of cancer, including but not limited to prostate cancer, pancreatic cancer and melanoma. This condition is often referred to as 'the breast cancer gene'', being ''high risk'' or by one of the genes that fall under HBOC syndrome, such as ''BRCA'' but hese terms don't tell the whole story. We prefer the more inclusive term, RISKYGENES
About 10% of all breast and prostate cancer and up to 25% of all ovarian cancer is known to be hereditary. This translates to at least 1/2 million Canadians who have or will develop hereditary breast, ovarian or prostate cancer. Not all RISKY GENE carriers will develop cancer, and some will develop one of the other related types of cancer. Taking this into account, over 1 million Canadians are estimated to carry RISKY GENES.
Unfortunately, awareness remains so low that about 80% of all carriers do not yet know they are affected, so can't make informed decisions that could save their lives.
WHAT IS HBOC SYNDROME?
Of the more than 1 million Canadians estimated to be affected up to 80% are still unaware.
Nothing can make your own journey seem less daunting than by helping others. There are so many ways to get involved but one of the most important is to support the RISKY GENES AWARENESS PROGRAM. We believe this to be the only program of its kind, with the primary purpose of actively seeking out persons who do not yet know they are affected, to ensure they have the opportunity to make informed health decisions that
could save their lives.