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Finding out one has an inherited mutation for cancer can be an extremely traumatic experience. People living in carrier families have often lost parents or close relatives and live in fear of being next. Loved ones and friends are not always supportive of the difficult choices that carriers make to protect themselves. Carriers and their families need to know where to turn. We are here for you.
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WHO IS AFFECTED?
We provide supportive connections and essential information about specialized services and resources
Hereditary breast and ovarian cancer (HBOC) syndrome is caused by one or more of a number of inherited gene mutations that result in a high risk of breast, ovarian and prostate cancer, and slightly higher risk of some other types of cancer. This condition is often referred to as the 'breast cancer gene', but more correctly as being 'high risk', 'hereditary' or as having 'risky genes', since the condition is not just about breast cancer.
Based on the most conservative statistics, 5-10% of all breast and prostate cancer and 10-15% of all ovarian cancer is thought to be hereditary. This translates to up to 1/2 million Canadians. To put this in perspective, this is 3-5 times more people than are estimated to have multiple sclerosis. Both men and women can carry risky gene mutations. Each biological child of a carrier has a 50% chance of also being a carrier.
WHAT IS HBOC SYNDROME?
Since 2002, the HBOC Society has devoted its energy to passionately serving those directly and indirectly affected by HBOC syndrome, To date, we remain the only organization in Canada attempting to address all issues facing this extremely under-represented and under-funded population.
Nothing can make your own journey seem less daunting than helping others in the same situation. There are so many ways to get involved, ranging from simply leaving us your name as a supporter of the cause, to volunteering for events or joining a working committee. If we don't support our own cause, who will?